Achievements

Achievements

Making a positive difference to the cancer experience

Many of our achievements have come about by encouraging and influencing other sectors of the cancer world to do the things CVN members recognise as needing to be done. Some are achieved on our own initiative. They are all aimed, at various levels, to make a positive difference to the cancer experience of people now, and of those who follow us.

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2001

Ongoing representation of the needs and ideas of thousands of people diagnosed and living with cancer

2001

Cancer Consumer Advocacy Training program (commenced October 2001) developed and maintained (with Cancer Council NSW)

2003

Successful planning of, and assistance to, the establishment of Cancer Voices in other states and territories, and nationally.

2004

Raised awareness of need to reform the NSW Isolated Patients’ Travel and Accommodation Scheme: Petition of 16,000 in 2004

2005

Senate Inquiry’s (June 2005) top recommendation calls for a Directory of Cancer Services and Specialists to be developed by Cancer Voices in association with Cancer Australia

2005

Publication of the Charter of Cancer Consumer Values, November 2005 & 2008, in response to the Paris Charter Against Cancer, launched NSW Parliament House, 1 March 2006. Charter of Values

2005

Complementary Therapies Conference 23 OCtober 2005: mounted with Cancer Council NSW; Complementary and Alternative Therapies Position Statement

2006

Provision of regular advice to decision-makers about issues of importance to people affected by cancer Issues Leaflet and Newsletters

2007

Productive planning with Cancer Council NSW to improve co-ordination of, assistance and access to cancer support groups

2007

Input via submissions to Inquiries, participation in seminars and presentations to conferences on all topics of importance to cancer consumers

2008

Development of, and participation in, the Consumer Involvement in Research Project (with The Cancer Council). Set of Cancer Consumer Values Criteria for application to research proposals.

2009

Over 60 trained and informed consumer representatives sitting at 180 decision-making tables (boards, committees, working parties)

2009

Radiotherapy Campaign: Participated in A Roadmap for NSW Radiotherapy (pub. May 2009), the NSW Radiotherapy Catch-Up Plan (ANZR Journal Aug 09), sought Audit Office Investigation into Management of NSW Radiotherapy Services (Report 23 June 2009), et al.

2010

Lobbied for a consumer friendly website for finding suitable cancer clinical trials – participated in its development and  launch 4 Feb 2010 – Australian Cancer Trials.

2010

Promotion of dialogue between major stakeholders to improve co-ordination of cancer services in NSW (NSW Health, Cancer Institute NSW and Area Health Services)

2010

Publication of ‘A Decade of Success‘.

2011

Memorandums of Understanding re inclusion of Cancer Voices signed with Cancer Council NSW and the Cancer Institute NSW

2012

Radiotherapy for Public Cancer Patients on Central Coast Campaign

2013

Consumer access to lists of cancer specialists and multidisciplinary care teams, via CanNET (Cancer Australia) Canrefer

2014

Regular review of fact sheets about cancer, available from Cancer Council NSW

2014

Successful proposal to MOGA to survey medical oncologists across Australia with view to ascertaining gaps for further action.

2015

Successfully advocated for “on demand” consumer access to pathology reports

2017

Ongoing participation in cancer services planning of major Area Health Services

2019

Held cancer consumer forums to gather view about advocacy focus and the way ahead – Consumer Forum: Nothing about us without us

Cancer Voices NSW is entirely dependent on donations to operate.

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Cancer Voices NSW
P.O. Box 713
MILSONS POINT NSW 1565

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